Thursday, 13 June 2024

James' own experiences of Primary Sclerosing Cholangitis (PSC) and transplantation are fuelling the 5th July fundraiser.

James writes:

"I spent a few years in the late 80s at Brighton College Junior School before moving away and then returning to the Senior School as a boarder in 1992. I have fond memories of evenings spent in the sports hall and down the road at Tuckers and less fond memories of battling with Greek and Latin.

After a slow journey to getting a degree, I have spent the last 20 years running a small software company which has allowed for a good-work life balance with my wife and 3 kids. 18 years ago, I was diagnosed with PSC which has had a significant impact on my life. PSC is an autoimmune liver disease and ultimately led to me having a liver transplant in 2022. Transplantation is an incredibly challenging journey to go through but I have been very fortunate in my recovery and I’m loving every extra day that my donor has given me. Last year I was able to compete in the British Transplant Games (above) and won medals in Squash, Tennis and Football. I now encourage everyone to register as an organ donor as I have seen so many lives saved through the generosity of donors.

This year, to mark 2 years since my transplant, 2 friends and I are cycling 95km from my home in Oxford to the Royal Free Hospital in London to raise money for PSC Support. This is the same journey I made to go for my transplant and we will leave at 1.30am (the time I received the call to say that a liver was available) and aim to arrive by 11am (the time I was called down to theatre). PSC has no cure and no effective treatment and PSC Support are funding £1 million of PSC research over the next 6 years. Hopefully, PSC sufferers won’t need to have transplants in the future."

You can support James here: pscsupport.enthuse.com/pf/james-tim-al-cycle-2024.

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